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Tourette's Toucan!

cemondesolitaire asked: For the person who is having trouble sleeping because of tics, I would really recommend using a weighted blanket. I use mine all the time and it really helps calm my tics down and even just calm my mind down. You could also try biofeedback methods (deep breathing, meditation, etc..), those have really helped me. I've had a lot of trouble with sleeping, so sometimes if it gets too bad, I just have to take sleeping medication if all else fails, but I know not everyone is comfortable with that.

Thank you for the suggestions! :D

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Tourette's Toucan!

thesuperhobbit asked: My best friend (actually, she's more like a sister) has TS. Is there anything I can do to help during ticcing fits? Or with tics in general? (I know I can't stop them & that if she suppresses them, it just leads to a tic symphony later; I mean like are there any specific ways to show emotional/moral support?

I think it’s awesome that you care enough to make this effort! The best thing you can do is be as supportive as possible, i.e. never mock her tics (even if you may think it’s harmless), help her with coping mechanisms such as talking her down from an anxious episode or bringing her her favourite food when she’s upset, stand up for her when other people are being assholes, and make her feel like she can tic around you without you even batting an eyelash (this especially includes vocal tics). During a tic fit, you can do things like talking her through it, getting her away from dangerous things, bringing her water/food afterwards, etc… And look through this blog a bit! There have been other posts referencing this kind of thing. :]

Tourette's Toucan!

Anonymous asked: Do you have any tips on coping with anxiety?

Everyone’s anxiety is different, so I can’t really give too much help. There are the obvious things like meditation, medication, hobbies, etc… but everyone has their own thing. You can try googling different methods to see what works for you!

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Tourette's Toucan!

Anonymous asked: I can't sleep because I can't stop ticcing!

Yeah tics do often get in the way of sleeping. :/ Have you tried calming techniques before bed? e.g. drinking tea, meditation, watching a funny movie, etc… These can help calm your tics so they won’t interfere as much. :]

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Tourette's Toucan!

Anonymous asked: I like my tourettes. It's made me the person I am today. If it wasn't for TS I wouldn't have been able to meet Brad Cohen or James Durbin. I also wouldn't have all of my friends all over the country that I have met at camp and at TS confrences.

The TS community is incredibly supportive and full of awesome people. :] It’s definitely a great positive in the midst of all the negativity surrounding TS.

Tourette's Toucan!

Anonymous asked: I absolutely LOVE your blog! It's helped me so much, I can definetly relate to alot of the things you have posted. You are awesome!

Aww haha thank you! I’m glad I can help. :]

Tourette's Toucan!

Anonymous asked: Can you please post more memes?

I can only post as many memes as I have ideas for! Strangely enough, I have a life outside of this blog. :P You guys are all welcome to submit ideas as well!

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It’s an important moment in everyone person with TS’s life when you switch from making excuses to saying, “Oh, that was a tic.”

Tourette's Toucan!

3dprintmeafucktogive asked: Matchstick Men did a great job of showing a realistic view of Tourette's. His tics were rather typical, and added a great deal to his character.

I’ve never seen it, but I’ll be sure to check it out! Thanks for the suggestion!

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Tourette's Toucan!

Anonymous asked: What is your opinion of the Tourette's episode of South Park? Do you think it does a decent job of showing how misunderstood ts is or do you think it comes off as just being damaging and perpetuating stereotypes?

I’ve only seen it once, and it was years ago, so I don’t really remember too much. I remember the character who was pretending to have TS pissing me off because he was stigmatizing it further and making a mockery out of it, but then I remember being appeased a bit during the group therapy scene. The entire purpose of South Park is to be offensive, so I don’t expect anything less from an episode about a super stigmatized disorder. Everyone in the TS community has very mixed opinions about that episode.

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Tourette's Toucan!

Anonymous asked: Why is it that when you are a teenager tics get alot worse? I am 15 and my Tourettes has never been this bad? (I've had it since age 4)

Every case of TS is different. Some people’s tics disappear by the time they turn 15, some people’s stay terrible until they’re 40. Mine got a million times better in high school, then got much worse again in college. Tics wax and wane, so some periods of time will be better than others, but I can’t give any explanation as to why one case is different from another.

Tourette's Toucan!

Anonymous asked: My twin brother and I both have tourettes, but his is alot worse and our doctor said he has to get DBS. I'm really scared that something bad could happen, but I don't want to tell him. How do I deal with my twin having to get friggin brain surgery!?

No one is forcing him into anything. It’s a very personal decision, and if he chooses to make it, you’re going to have to support him. If the benefits outweigh the risk, then it may be a wise decision. But DBS is always an absolute last resort, in extreme cases. How can you deal with it? Be supportive, and try to think about how much harder it must be for him than it is for you.

Tourette's Toucan!

Anonymous asked: What are some good meds for tourette? I am currently on risperdal and tenex, but the side effects are absolutley terrible. I really want something that works and doesn't have alot of side effects.

I’m not a psychiatrist. I have no idea what would work for you. I’m a 20-year-old girl with a blog. If your side effects are hurting more than they’re helping, talk to your doctor about stopping the medication. I could list off a bunch of meds that people use, but you could just as easily google it, or, you know, talk to an actual medical professional. The FDA has not approved any medications specifically for Tourette’s, there are just things that happen to work in some cases.

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Tourette's Toucan!

Anonymous asked: Why? Just why? Why me? Why do I have to have Tourettes, OCD, ADD, and anxiety?

Listen, thinking like that is only going to make your life harder. Everyone has their shit to deal with, and the people who spend their whole lives pitying themselves instead of turning it into strength never get anywhere and lead miserable lives. It happened because it happened, not because of anything you did, and you’re going to have to accept that you can’t change it. Sending 5 messages a day complaining to a support blog isn’t going to help anything, the only thing you can control is how you perceive your problems. Stay positive and your life will be so much easier.

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Tourette's Toucan!

Anonymous asked: Why is there such a stigma surrounding tourettes? And why is it that eveyone immediatley thinks coprolallia when you say you have tourettes?

Because people are stupid lol. People have always been afraid of the unknown, and twitching and shouting things have long been symptoms of ~insanity~ or whatever. Coprolalia is what the media harps on because it’s the “funniest” part of Tourette’s. Putting actual symptoms of TS into television and movies wouldn’t be entertaining at all because Tourette’s SUCKS. That’s why education is so important, and why I’m a huge advocate for the Youth Ambassador program. When people are knowledgable about something, they won’t be as afraid.