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Tourette's Toucan!

runn1n9-away said: Hey ur blogs really nice cause I dont feel like a freak. Cause I yell things alot and it started out as hiccups but now I scream wherever I go and I get really sensitive about it cause everyone makes comments about it and I feel like I cant be normal

Thank you! I think you can absolutely be normal, if that’s what you’re looking for. There are plenty of people with TS who walk around every day without feeling bad for themselves, and you can without a doubt be one of them if you work at it.

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Why TS jokes are harmful:

It’s not just hurt feelings, it’s perpetuating myths.

People who make jokes at the expense of vocal tics perpetuate the myth that TS is simply shouting out things, which are often “funny.” This myth is not only harmful because it makes light of a serious disorder, but it forces people to be exposed to the idea that TS is only vocal tics. This means for those people (such as myself) who have mainly motor tics, even the most intelligent doctors will not be able to diagnose them properly, because they simply don’t know what the disorder truly is.

Then, of course, there is the problem of being insensitive. You wouldn’t make fun of someone for having asthma or diabetes, right? So why would you make fun of an equally biologically based disorder? Tourette’s causes serious injuries, hospitalizations, and sometimes permanent damage. People have been made wheelchair-bound, dislocated joints, torn ligaments and tendons, and had endless other injuries inflicted due to our bodies working against us. I myself have a knee that dislocates itself periodically due to an old tic I haven’t even had for over 10 years. Tourette’s is not a funny disorder full of jokes and laughter, it is a serious medical condition.

Lastly, why is making a joke at someone else’s expense ever okay? Even if you’re just calling someone else’s hair ugly, you never know what’s going on in his/her life to cause it. How about we just stop being nasty for the sake of being nasty and start being respectful? Is that such an insane proposition?

What do you guys think about Tourette’s jokes?

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mentalhealthkitten:

everyone with tourette’s is adorable and perfect, no exceptions

(via strawberriespanic)

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The Importance of Diagnostic Labels

So I’m taking a class called Behavior Deviation in Children and something we went over today seems pretty relevant to questions I get here often: What are the pros and cons of getting a formal diagnosis?
I think everyone who has been following the blog for a while knows I’m 100% pro-diagnosis and professional treatment, but I’m always looking to show every angle of each issue, rather than just spewing my opinions at you guys. So here’s the list we were given:

Pros to diagnostic labels:

  • Helps clinicians summarize and order observations
  • Facilitates communication amongst professionals
  • Aids parents by providing recognition and understanding of the child’s problem
  • Facilitates research on causes, epidemiology, and treatments of specific disorders

Cons to diagnostic labels:

  • Disagreement about effectiveness of labels to achieve their purpose
  • Negative effects and stigmatization
  • Can influence children’s views of themselves

I think the list of pros definitely outweighs the cons, not just in numbers, but in the importance of the subject matter. This is a pretty great way to summarize my thoughts in a scientific and concise manner. What do you guys think?

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Tourette's Toucan!

circularthoughts said: Ive been diagnosed with a pretty rare thing according to my doctors, after about 7 years of trying to diagnose me, a study has been finally done and they came up with a name to this disorder that I and very few other people have. It is called complex motor stereotypies. To make it short, it is bilateral tic disorders that I am unable to suppress and have been increasing over time. I am starting to become defeated. Crying daily. Lost the ability to write and there is more to come.

I’m sorry to hear that. :/ I’m not sure what you were looking for me to say, but I really am sympathetic towards you during this rough time in your life.

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Tourette's Toucan!

grover-loves-ephram said: Hi again! Yes sorry, you kind of answered it by saying to make sure to ignore any tics that may be interruptive since his was mostly happening when I was talking. So how do you suggest ignoring them without coming across as uncomfortable, when I'm not? Just overall how to react appropriately? Thank you! :)

Just straight up ignore them. Don’t flinch, don’t blink, just act like nothing happened. He obviously knows it’s disruptive, so making him feel like it doesn’t actually affect any aspect of the conversation will definitely help. The best reaction to a tic is no reaction (for the most part, if you make a solid non-offensive joke with the person’s permission, you’re off the hook).

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Tourette's Toucan!

Anonymous said: Do you know anything about people with TS getting service dogs? My tics have gotten really bad over the last few years & I've pretty much exhausted all of my options. I've seen a couple people mention getting service dogs to help with aspects of their TS, but I'm having trouble finding actual information.

Absolutely! I know of a few people who have gotten service animals because of Tourette’s. You can go here to find service dog trainers in your area!

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Heredity plays big role in OCD and Tourette's, study confirms - Futurity

You can never have too much research about TS!

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Tourette's Toucan!

Anonymous said: What is it like to live with Tourette Syndrome? My friend at school has it but she doesn't talk about.

Everyone has a very different experience. Some cases are more severe, some people have more painful tics, more embarrassing tics, unsupportive families, etc…. Every case of Tourette’s as as unique as someone’s fingerprints.

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Tourette's Toucan!

grover-loves-ephram said: Hi! First off, I love your blog. It is so educational & Im so glad I stumbled upon it. A friend of mine who I've had a crush on forever has TS. Could you give some feedback or advice for someone who doesn't have it. I saw him for the first time in a while yesterday and was nervous because I like him, then I was surprised his vocal tic has changed since I last saw him. But we had a nice conversation about life. I'm just worried he mistook my nervousness as discomfort.

It’s really awesome that you’re reaching out to make his life more comfortable! :] What kind of advice are you looking for? The general things I can tell you are things like 1. Make sure he knows you’re not judging or embarrassed by his tics, 2. Ignore any tics that may be interruptive, such as a vocal tic in the middle of a sentence, 3. Ask him how you can make him feel more comfortable (but make sure you ask in an appropriate way), and 4. Educate yourself on what Tourette’s actually is. I have some resources on here, but you can also google some more information.

But again, do you have any specific questions you’re looking to have answered?

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Tourette's Toucan!

Anonymous said: Hello, I've been thinking about trying to get diagnosed with a tic disorder because while I always had a couple, recently they've been getting more frequent and a wider range, after going a couple years without having to explain it that much like I used to, starting to have to again. But they're not generally SO much of a problem that I feel I need accommodations, so I'm not sure if I should get dxed because I'm worried if being dxed would cause discrimination? I'm in the UK.

I don’t see how a formal diagnosis will cause any discrimination that doesn’t exist without one. Having a diagnosis doesn’t mean you need to fight for accommodations or even ever go to a doctor for treatment. It just means you’ll have a name for what you have and an explanation for why you do the things you do. I am 100% pro-diagnosis.

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Tourette's Toucan!

Anonymous said: I'vehadtourretesforalongtimethoughitcan getprettybadattimesI'vealwaysthoughtokayI'mokayI can still do most things but now I've developed a bad stutter I feel like I can't do anything any more because I'm embaressed to talk or no one can understand me

I think we’ve all had vocal tics that get in the way of our speaking. Real friends will be patient with you, and anyone who makes you feel embarrassed shouldn’t be in your life. Don’t feel bad, life is tough for everyone in their own ways, but the only way we can get through it is to stay positive and keep going. Your stutter will most likely go away, especially if you work hard at it (go to a speech therapist, etc…) and your tics will get better.

Tourette's Toucan!

mrfizzlesknowswhenyoulie said: I work in law enforcement and have gone through several extensive background checks and at no point do they ask you about your health. Even during a physical they don't really ask that sort of question.

Perfect, thank you for proving my point! Health is a very private thing, no one has to know about it but you and your doctor (and your insurance company lol).

Tourette's Toucan!

Anonymous said: Thanks. She said she told them because they would have found out anyways through a background check but I was fairly certain those things weren't allowed to show up. Besides if it had I would have asked how it did and source the problem while being able to explain in my own time. I do horrid in spotlights. If I could have explained myself then maybe I would have got them better to understand. I felt like my friend was blaming me for having to correct however.

That absolutely would not show up on a background check. Health issues do not come up on things like that. Putting you on the spot really wasn’t the best way for you to disclose that information. Your friend was wrong in doing that, it doesn’t matter what she thinks.