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Tourette's Toucan!

valylalanyllysylglutamyllysylmet said: I made my roommate a toucan costume and now I'm really tempted to steal the beak and wings so that when people start saying ignorant shit about TS I can just whip them out and be like, "listen here, motherfucker, the Tourette's Toucan is going to educate the fuck out of you."

Do it. :]

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Tourette's Toucan!

iloverichardwright said: For people who have trouble sleeping: my boyfriend has TS with comorbid ADHD and OCD and he says melatonin does wonders to help him sleep. One 5mg tablet should be enough but if not it's ok to take another, just make sure you use it right (take same time each night etc, basic melatonin rules). Also wanted to say I absolutely love scrolling through your posts with him, he finds people he can relate to and it just further teaches me all about TS so thank you :3

Awesome, thank you! I’m so glad you guys can find some happiness here. :D

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Tourette's Toucan!

shotgunglitterbomb said: I just want to say how grateful I am for this blog. I don't know many folks in real life who also have TS. I feel very supported and at home here. Thank you for creating a safe space for us

Thank you so much! I get a bunch of messages like this and it really makes me feel wonderful. I’m so glad I can help you guys. I never had anything like this in high school so I know how valuable it can be. <3

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Tourette's Toucan!

Anonymous said: Whenever I get yelled at a mean voice pops up and tells me how worthless I am and how I'm not even worth the air it takes to keep me alive so I should do the world an favor and kill myself over population and all is this a part of my tourettes?

That itself isn’t a part of Tourette’s, but there are a million comorbid disorders that go along with it. Depression is often accompanied by feelings of worthlessness and suicidal thoughts. If you’re experiencing an actual voice telling you to do this, this is an auditory hallucination. Please try to find some professional help to get this sorted out/get a correct diagnosis and start going through the steps of being on medication and learning coping mechanisms. Hearing voices is never a good sign.

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Tourette's Toucan!

maribakumon said: At night I have trouble sleeping because my tick cause me to push my head back into my pillow. Do you have any advice?

I’ve had a neck jerking tic for about 15 years so I COMPLETELY understand this problem. I’ve found that having one of those incredibly squishy bean pillows helps to reduce some of the shock. Also try taking things like melatonin (I’ve never done it, but I hear very good things) to help you fall asleep more quickly.

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Tourette's Toucan!

borntobea-whore said: They never told me the name, my doctors are beyond poor, I'm sure any British ticcers can relate to the pain and joke of CAMHS. When I first got diagnosed they just told me a tic disorder and I told him I was going to say Tourette's instead and tic disorder was never brought up again.

The only criteria for TS is one motor and one vocal tic for at least one year present before age 18. It sounds like that’s what you have, so congrats, you have Tourette’s!

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Tourette's Toucan!

candynailpolish said: I have this awful inhaling tic that basically forces me to hyperventilate, and sometimes I get so lightheaded I think I might fall over. Does anyone have advice for coping with this sort of thing? It's really intrusive.

This is actually a pretty common tic, so hopefully people can respond with their ideas. As for me, I’ve had similar tics and I’ve always just learned breathing techniques that allow me to regulate them a little more effectively. It’s not an easy process, but try looking up some ways to breathe peacefully and practice!

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Tourette's Toucan!

Anonymous said: I ❤️this blog. It feels like home away from home. Where the only people who really know what I'm going through are part of this blog. Thank you for setting it up! #TeamTourettes

Aww thank you so much! I’m really glad I can make you feel so at home. :D

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Tourette's Toucan!

Anonymous said: I don't have tourettes because I had a vocal tic a few years ago, but I pretty much grew out of it. Anyway, one of my tics is nodding and it really sucks when I'm listening to music because I tic to the beat lol.

I have pretty bad echolalia/palilalia so I constantly have to say the words to the music I’m listening to. I feel youuuu.

Tourette's Toucan!

Anonymous said: I have this tic where I blink allot really hard it's so awful I've been able to stop it for 2 years but I can feel it coming again how do I stop it from happening

I had a blinking tic for years, I know how frustrating it can be. :/ I never really figured out a way to stop it, they just naturally come and go. Make sure you don’t rub your eyes too much, just try to keep them squeezed closed when they hurt. Try to take deep breaths and focus on them when they’re particularly bad. I’m sorry I can’t help more. :/

Tourette's Toucan!

Anonymous said: My dad about my new coproalia: when you first got diagnosed I thought no way people with tourettes cuss the media has blown it way out of proportion but in light of recent developments......

Tell him that less than 10% of the TS population has coprolalia. Of course that means some people will get it, but your having it doesn’t mean it’s all that common. Obviously there has to be some basis in truth for the media to harp on it, but it’s still a pretty rare occurrence.

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Tourette's Toucan!

borntobea-whore said: Also, I haven't read through your tumblr in some time as I haven't seen it on my dash but I swear I learn more things from your blog than from my actual doctor. I went to her last week about my rage and how it scares me, her response was "it's your Tourette's." Your explanation was far better thank you!!

Thank you so much! I try. :]

Tourette's Toucan!

borntobea-whore said: On tic disorders, I technically have a tic disorder because my tics started at age 13 not at typical puberty stage however I still have both motor and verbal tics, the only difference for me was the age so I find it easier to tell people I have Tourette's rather than go through the long explanation.

Do you mind me asking what the name of this tic disorder is? A Tourette’s diagnosis is still possible if the tics appear up through age 18, so 13 isn’t an abnormal age at all.

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Tourette's Toucan!

Anonymous said: How exactly do weighted blankets work? I saw a few posts mentioning them and was wondering what they are.

A weighted blanket is just that: a blanket that has sand or other things to weigh it down. Many people with sensory problems find it very calming to have something heavy on top of them, so this allows a safe way to have pressure. Here is a great page on the uses and benefits of them!

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Tourette's Toucan!

Anonymous said: What is the so called main cause of ts (what doctors say causes it) ?

It is a dopamine and serotonin imbalance in the basal ganglia. What that means is two neurotransmitters (chemicals in your brain) are not in the right amounts in the part of the brain that controls movement.