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Tourette's Toucan!

grover-loves-ephram said: Hi again! Yes sorry, you kind of answered it by saying to make sure to ignore any tics that may be interruptive since his was mostly happening when I was talking. So how do you suggest ignoring them without coming across as uncomfortable, when I'm not? Just overall how to react appropriately? Thank you! :)

Just straight up ignore them. Don’t flinch, don’t blink, just act like nothing happened. He obviously knows it’s disruptive, so making him feel like it doesn’t actually affect any aspect of the conversation will definitely help. The best reaction to a tic is no reaction (for the most part, if you make a solid non-offensive joke with the person’s permission, you’re off the hook).

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Tourette's Toucan!

Anonymous said: Do you know anything about people with TS getting service dogs? My tics have gotten really bad over the last few years & I've pretty much exhausted all of my options. I've seen a couple people mention getting service dogs to help with aspects of their TS, but I'm having trouble finding actual information.

Absolutely! I know of a few people who have gotten service animals because of Tourette’s. You can go here to find service dog trainers in your area!

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Heredity plays big role in OCD and Tourette's, study confirms - Futurity

You can never have too much research about TS!

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Tourette's Toucan!

Anonymous said: What is it like to live with Tourette Syndrome? My friend at school has it but she doesn't talk about.

Everyone has a very different experience. Some cases are more severe, some people have more painful tics, more embarrassing tics, unsupportive families, etc…. Every case of Tourette’s as as unique as someone’s fingerprints.

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Tourette's Toucan!

grover-loves-ephram said: Hi! First off, I love your blog. It is so educational & Im so glad I stumbled upon it. A friend of mine who I've had a crush on forever has TS. Could you give some feedback or advice for someone who doesn't have it. I saw him for the first time in a while yesterday and was nervous because I like him, then I was surprised his vocal tic has changed since I last saw him. But we had a nice conversation about life. I'm just worried he mistook my nervousness as discomfort.

It’s really awesome that you’re reaching out to make his life more comfortable! :] What kind of advice are you looking for? The general things I can tell you are things like 1. Make sure he knows you’re not judging or embarrassed by his tics, 2. Ignore any tics that may be interruptive, such as a vocal tic in the middle of a sentence, 3. Ask him how you can make him feel more comfortable (but make sure you ask in an appropriate way), and 4. Educate yourself on what Tourette’s actually is. I have some resources on here, but you can also google some more information.

But again, do you have any specific questions you’re looking to have answered?

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Tourette's Toucan!

Anonymous said: Hello, I've been thinking about trying to get diagnosed with a tic disorder because while I always had a couple, recently they've been getting more frequent and a wider range, after going a couple years without having to explain it that much like I used to, starting to have to again. But they're not generally SO much of a problem that I feel I need accommodations, so I'm not sure if I should get dxed because I'm worried if being dxed would cause discrimination? I'm in the UK.

I don’t see how a formal diagnosis will cause any discrimination that doesn’t exist without one. Having a diagnosis doesn’t mean you need to fight for accommodations or even ever go to a doctor for treatment. It just means you’ll have a name for what you have and an explanation for why you do the things you do. I am 100% pro-diagnosis.

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Tourette's Toucan!

Anonymous said: I'vehadtourretesforalongtimethoughitcan getprettybadattimesI'vealwaysthoughtokayI'mokayI can still do most things but now I've developed a bad stutter I feel like I can't do anything any more because I'm embaressed to talk or no one can understand me

I think we’ve all had vocal tics that get in the way of our speaking. Real friends will be patient with you, and anyone who makes you feel embarrassed shouldn’t be in your life. Don’t feel bad, life is tough for everyone in their own ways, but the only way we can get through it is to stay positive and keep going. Your stutter will most likely go away, especially if you work hard at it (go to a speech therapist, etc…) and your tics will get better.

Tourette's Toucan!

mrfizzlesknowswhenyoulie said: I work in law enforcement and have gone through several extensive background checks and at no point do they ask you about your health. Even during a physical they don't really ask that sort of question.

Perfect, thank you for proving my point! Health is a very private thing, no one has to know about it but you and your doctor (and your insurance company lol).

Tourette's Toucan!

Anonymous said: Thanks. She said she told them because they would have found out anyways through a background check but I was fairly certain those things weren't allowed to show up. Besides if it had I would have asked how it did and source the problem while being able to explain in my own time. I do horrid in spotlights. If I could have explained myself then maybe I would have got them better to understand. I felt like my friend was blaming me for having to correct however.

That absolutely would not show up on a background check. Health issues do not come up on things like that. Putting you on the spot really wasn’t the best way for you to disclose that information. Your friend was wrong in doing that, it doesn’t matter what she thinks.

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Tourette's Toucan!

Anonymous said: My mother started telling a relative about a tic I had had (pounding on my chest with my fists) and thus telling them about my TS. I am so not comfortable with other people outing me, especially my mother, ESPECIALLY as an anecdote like 'my daughter did a thing, don't be surprised if she pounds on her chest ahahaha xDD'. It's been bothering me for months. I talked to her later about it, but it still bothers me. I wonder how many other people she has told. I feel I can't trust her about this.

That’s really awful, I’m sorry to hear that. It is completely unacceptable for other people to disclose your personal information, regarding anything. She definitely betrayed your trust. Hopefully now that you’ve told her it bothers you, she won’t continue!

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Tourette's Toucan!

Anonymous said: The thing is that there is hardly any job that will even consider hiring me. So I don't know. I feel like giving up and just living off disability for a while as I get a college education and learn how to open my own buisness. No everyone can be hired. I guess I am just one of those people that can't. I don't know how to get it across to my friend that it was harmful though. It put me on the spotlight when they just blurted it out. They wouldn't like me telling others she has epilepsy.

Everyone can find a place they belong. Don’t get defeated. I know dozens of people with Tourette’s who have jobs, including myself. It wasn’t okay of your friend to bring up a disorder of yours. You should definitely talk to her about how inappropriate that was, but make sure you do it in a non-aggressive way. You don’t want to be accusatory, but you do need to make it very clear that she can’t do things like that, especially because it violates the non-disclosure laws about disabilities.

Don’t settle for living off Disability, don’t ever settle for anything. If you work hard enough, you can get anything you want. You just have to try. It may seem impossible at times, but if you keep pushing through it, you’ll be fine.

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Tourette's Toucan!

Anonymous said: It's me again. I didn't snap at them. I was like, well I can't exactly control them. I can stifle them sometimes, but sometimes they get worse. I was trying to describe how they really were, but I was just getting really horrid looks that made my tics feel like they were coming on. It put me in a really bad situation that I didn't like being in. I felt like I was calling my friend a liar while making it seem they were worse than they actually were. I mentioned a movie after and the employer...

was all like this is real life and not a movie. I tried to explain to her that it was based on real life and the man worked with children and the children loved him. Yet I felt like they didn’t want to hear anything I had to say.

It sounds like this employer is a real asshole. Of course I can’t say “If they’re mean, just ignore them!” because jobs are a little bit more important than high school bullies, but I don’t think you really did anything wrong. You were trying to put out true information to make your potential work environment a more comfortable and accepting place. If this employer can’t understand what you’re going through and won’t make any attempts to learn, maybe it’s best for you to try to find another job. I know that sounds like admitting defeat, but you should always keep your options open to avoid negative forces in your life. I really do hope you get the job and I hope this employer can learn to be more accepting and understanding of your disorder.

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A Delightful Encounter.

I was walking backstage at my college a few days ago down this hallway type thing and there was only one kid around. I squeaked really loudly/suddenly, and without flinching he said casually “vocal tic?” I nodded, and he continued on his way. It was the first time that’s happened to me and it made my entire existence. Theatre Kids FTW!

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Tourette's Toucan!

Anonymous said: I have tourettes and a friend of mine helped me sign up for a job. One of the first things they said is that I had tourettes and that I could control it. So I instantly corrected them on it. The only reason I did that is because I can't. I can't control them. I can suppress them in sooome instances. Plus I feel that saying that I can control them would hurt the whole tourettes movement. Anyways I feel that the employer and her looked at me bad. I may not get hired over it now.

For the record, you don’t ever have to tell an employer about your Tourette’s. Just putting that out there for everyone. If it does come up because the interviewer/employer brings it up, there are a few things you can do. You can pull out the science and tell them exactly what Tourette’s is so there are no misconceptions (e.g. them thinking you’ll be cursing in front of customers when you don’t have coprolalia). You can go the personal route and talk about how your specific tics will not get in the way of this particular job and that they shouldn’t worry. The important thing is to make sure you do it in a mature and informative way so you don’t come across as nasty or difficult. There’s a fine line between quickly correcting someone and snapping at them (which I’m not accusing you of, just making a general point) so make sure you keep an idea in your head of a few ways to react appropriately to different reactions.